I had a scan last week which has revealed a couple new areas of disease in my chest and neck. This is a real bummer. I'll be going back on Brentuximab (aka SGN 35, Adcetris) infusions which I had prior to and post transplant. I responded well to the drug after transplant before (my residual disease disappeared prior to the graft really completely taking effect), so there is no reason to think that won't happen again. The infusions are every 3 weeks for about 45 minutes (which means about a 3 hour office visit), and the side effects are very minimal -- I'll probably experience some neuropathy (numbness) in my fingertips as I did before, and perhaps some fatigue, but that should be it. I'm also being tapered off the immunosuppressant really quickly and am now totally off the steroid in order to allow the graft-vs-lymphoma effect to work to its fullest.
Life goes on.....
